Article in Science magazine, reports the news those of us with ME/CFS have been waiting for. A strong link to a virus (similar to HIV) has been found as a probable (but not yet proven) cause.
Progress how slowly it moves…how long we have been waiting. For those of us with ME/CFS, our journey is one not only of physical illness and loss of function, but one of stigma and judgment both within the medical world and society. It is a journey of hoping and working for research to find answers and awareness of the reality of ME/CFS to grow.
What I feel after reading this article is beyond words. After twenty years of living with ME/CFS… of losing people I love who did not understand…of experiencing inhumane disenfranchisement in the medical community…and living with one heck of a disease…
…after twenty years of my children, my husband and I doing our best to live up to my youngest daughter’s mantra, which she wrote for the family when she was five in big blue crayon… ”there’s no such thing as giveing up!”… We are almost there…We are almost there!
If you haven’t read this article yet, don’t miss it. If you have ME/CFS or love someone who does you will want to dance. For even if this hypothesis of cause is found incorrect…CFS has made the scientific magazines…the biggest newspapers…awareness of the reality of ME/CFS is growing.
Wow! Wow! Wow! Dance! Dance! Dance! Shout! Shout! Shout!
There is a good chance, that those who in the near future who suffer the misfortune of being stricken with ME/CFS, will find a compassionate medical community that understands and works with them to regain the most health and function possible…and do so without judgment that its “all in their head”.
Wow! Dance! Shout!
