The CFIDS Association of America is asking us to “Tell us what its like to be you”. They want to share what we tell them with the medical community and the public so this darn tootin’, pain in the booty (and many other parts), life tripping up, misunderstood disease with a misfit name (Chronic Fatigue Syndrome), can come further out of the shadows of ignorance and into public/medical consiousness and medical journals. After the medical journals…diagnostic tests, treatments follow (and the road to a cure begins).
Every little bitty step will pave the road that gets us there. This step just takes a few minutes…Share what its like to be you, living with CFS (or living with someone or loving someone who has CFS). Survey, “tell us what its like…”–scroll down to “YOU MATTER”, survey link is just below. (*link no longer works as survey has been completed).
I am going to pass this on to my clients with CFS~ Thanks for sharing this!
Hi, do you have a link to where this appears on the CFIDS association website? I’d love to let people know about it
Thanks
Thanks for the info Kerry. Always good to be informed and do what we can from our sanctuaries.
Perpetualspirit–thank you for letting me know that the link I thought I added didn’t work! It does now. When you click on Survey…, it will take you to the CFSlink page. Scroll down under “You Matter” to find the survey link.