Jul 272010
I still am
despite this
with this
fighting this
under this
molded
burned
touched
taught
humbled by this
uninvited illness
engraved upon my life
not yet named
not yet understood
I still am
here
loving
laughing
feeling
thinking
creating
dreaming
enduring
I still am
a soul born into an
awesome, mysterious
wonderful and sometimes
cruel and unjust world
Despite this
with this
under this
fighting this
humbled by this
I still am
and I will not
give up
by, Kerry Ryan-Kuhn (published in CFIDS Chronicle-Winter 2003)
Wow, great poem Kerry….are you part of the creative for a second journal project? Journals are being sent to people all over the world with M.E./CFS and you can use a couple pages for an artistic peice…..your poetry would be great for it.
upnorth´s last blog ..To drug or not to drug
This is a beautiful poem, Kerry. Thanks so much for sharing it (and sharing that fighting spirit) with us all.
Laurel´s last blog ..In Fifteen Years
I LOVE THIS!
With reference to ‘upnorth’, I have finished my journal#2 entry, and it is on it’s way to Kerry (Via Europe first!).
Keep it up Kerry, I have really missed your presence in my laptop…!
Zar
Zarla´s last blog ..Dissolving Concrete!
Thank you for sharing. I hope your poem is able to reach as many as possible – so that they can feel the “connection” also.
dawn´s last blog ..CFS likes to Fool You
So beautiful. Thank you for sharing and giving voice to what so many of us feel.
Shelli´s last blog ..The Exercise Question Revisited
Thank all of you for being here to share with,
It means an extra lot to me on days like today when reading and being on the computer are difficult. I learn just how much our online connection means to me as I find myself thinking of all of you, along with finding pictures in the texture of my bedroom ceiling. Thinking of doing a post soon, on just that, sharing the images we find on our ceilings, when that’s all we’re able to do.
Okay off the computer again, before my husband catches me. Days like today using my noggin to read and write and look into a computer screen worsens my illness…consequently this increases my needs…and makes a lot more work for my husband to do.
The next time you’re “ceiling painting” remember the images so you can share them.
PS. Zarla, is the journal really on the way? Think I’ll stop looking for images on the ceiling and turn my thoughts to what I’m putting in the journal. Upnorth, I’ve planned on using a poem or too and feel affirmed in that by your suggestion. Thanks!
Kerry´s last blog ..Untitled…CFS
Beautiful Kerry. Yes, the world is mysterious — sometimes awesome, sometimes cruel and unjust. Thanks for posting this.
Love the poem, simple but says what it needs to say very effectively.
I was actually considering doing a painting about living with illness in which i try to re-create the beautiful patterns i used to get on the bedroom ceiling when i had curtains and an extra piece of fabric draped over it to cut out the light!!!
I now have a black-out blind, which does not cut out all light either but is an improvement; but there are no nice patterns any more!
Ashy´s last blog ..Night Out!
Ashy, Love the way you found the beauty in your ceiling. ..enough to inspire painting. I think I’ve found all the images I can on mine, so perhaps I should take it from you and now look for designs.
Black out curtain sounds great. How we need to be able to remove all stimulation when our CNS gets overloaded. My bedroom curtains we made from a duvet cover. Its dark brown and two layers thick. When fully closed, they block out all light…thankfully.
Kerry´s last blog ..Untitled…CFS
Great poem! Thank you for sharing. Thinking…I still am…
Katy´s last blog ..No- youre not crazy
I hope you find yourself in better health again soon Kerry, and yes chuck…. the journal has 3 people to go through then it’s all yours! When I got it you were the next on the address list, but i was sent an updated address list to paste into it, and now you’re a little further down!
I was looking forward to sending you a little message in it, but t’was not to be!
Thinking of you, realised things might be a little challenging as you weren’t in cyber-space!
Take care, rest!
Zar
Zarla´s last blog ..I Follow Humbly
Just wanted you to know I have been missing you. Sending you lots of hugs and prayers your way! Looking forward to seeing you soon!
Dominiquue´s last blog ..FIRST EVER ONLINE HOUSE-WARMING PARTY!
Are you OK, seems like awhile since you posted.
I miss your writings. Hope you and family are fine, and that you are just taking break and all is calm.
Leah
Leah, you are not alone in missing our friendly blogger!
I believe that she is unable to get online at the moment, and we all hope for her speedy return here…!
My laptop isn’t nearly so friendly and full of fun when she’s not living in it!
Hope to ’see’ you soon Kerry!
Love n hugs,
Zar
xx
Zarla´s last blog ..Lost the plot!
I sure miss all of you. I’m having visual/ ocular challenges that are preventing me from being able to be on the computer.
Working on figuring out how to keep on blogging and taking part in this awesome community that lives inside my computer. I think of all of you often, and miss my eyes being able to visit you and read what your thinking and how you’re doing.
Glad you were able to visit long enough to update Kerry, Stay strong and I for
one am thinking of you and sending love your way.
Take care Chuck!
Zarxxx
Zarla´s last blog ..Lost the plot!
I’m sorry you are having such a challenging time with you eyes. I was glad to hear from you, though. I will be keeping you in my thoughts and prayers.
Hope you are able to get back to blogging soon. You are being missed!
Dominiquue´s last blog ..Next Chaper – Jewelry by Jolene
beautiful moving poem, I’m sure your fighting spirit will get you through your latest trials and tribulations. If you visit my site on attached link you can see what we are trying to do to spread the word and it also includes some poetry you may find interesting . If you visit on the attatched link http://dld.bz/mBZq and like what we are trying to achieve, you might consider exchanging your HTML banner code or your URL so we can advertise on each others sites.
Julie x
julie´s last blog ..Aruba Hotel & Spa on various dates for €2360
Kerry- I hope one of your family members reads our messages to you while you face another dip in the roller coaster ride. Miss your posts and just want to let you know I am thinking of you. Wishing you my best….words are awkward but know my heart is in the right place.
missing you Kerry, I hope you can find a way to blog again soon and also do your journal entry with the current visual issues (and all the other issues i am sure have not gone away!). Best wishes and thinking of you, ashy x
Ashy´s last blog ..Summer Holiday
What a truly amazing and deeply moving poem, Kerry. You epitomise your fight in everything you do and write. And I hope the fight eases a little for you. Take care x x