Comments on: Unsung Hero-in honor of my caregiver on his bday http://www.lemon-aideonline.com/?p=531 Squeezing the most out of life with chronic illnesses Tue, 07 Sep 2010 20:30:21 -0700 http://wordpress.org/?v=2.8.5 hourly 1 By: Kerry http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1751 Kerry Mon, 08 Feb 2010 20:59:02 +0000 http://www.lemon-aideonline.com/?p=531#comment-1751 Want to thank everyone for your kind responses to this post. It has been fun to share the encouragement and support with my husband. His birthday was a day of work and a night of a work emergency...but we managed to get out to a wonderful dinner. I wrote this post during the night before his bday. I couldn't sleep, and often write when I experience insomnia. I read this to him in the morning. He told me it was the nicest present he'd ever received. ;-) I share this, because his response to it taught me much...reminding me that I am enough...even if I can't get out and shop or take him to plays, movies, restaurants etc... I am enough...and love is enough. Pretty cool lesson. Got to give him another kudo for that one. Want to thank everyone for your kind responses to this post. It has been fun to share the encouragement and support with my husband. His birthday was a day of work and a night of a work emergency…but we managed to get out to a wonderful dinner.

I wrote this post during the night before his bday. I couldn’t sleep, and often write when I experience insomnia. I read this to him in the morning. He told me it was the nicest present he’d ever received. ;-) I share this, because his response to it taught me much…reminding me that I am enough…even if I can’t get out and shop or take him to plays, movies, restaurants etc…

I am enough…and love is enough. Pretty cool lesson. Got to give him another kudo for that one.

]]> By: Jeanne http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1742 Jeanne Sun, 07 Feb 2010 23:30:24 +0000 http://www.lemon-aideonline.com/?p=531#comment-1742 Kerry, Yes, we are fortunate! You did *not* miss the deadline for the IC letter. It's midnight tonight. :) Yay for steak dinner with Hubby! Yup! ;) Jeanne .-= Jeanne´s last blog ..<a href="http://chronichealing.com/tell-congress-about-your-interstitial-cystitis/" rel="nofollow">Tell Congress About Your Interstitial Cystitis</a> =-. Kerry,

Yes, we are fortunate!

You did *not* miss the deadline for the IC letter. It’s midnight tonight. :)

Yay for steak dinner with Hubby!

Yup! ;)

Jeanne
Jeanne´s last blog ..Tell Congress About Your Interstitial Cystitis My ComLuv Profile

]]> By: Kerry http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1741 Kerry Sun, 07 Feb 2010 23:27:41 +0000 http://www.lemon-aideonline.com/?p=531#comment-1741 Jeanne-- How awesome to know we both have hubbies that will take us canoeing, even if it means the possiblity of putting their backs out. I know the feeling of helplessly watching...I try to be a quiet, slow-moving...cheerleader. Sorry to have missed the deadline for writing to congress about IC--it is one of the most painful conditions--there is no pain like it... We did get out for my hubby's steak dinner and that was so nice to sit across from each other in a restaurant. All these things that "normal" people can do become incredibly awesome when we are able to. Here's to your hubby...another gem! Jeanne– How awesome to know we both have hubbies that will take us canoeing, even if it means the possiblity of putting their backs out. I know the feeling of helplessly watching…I try to be a quiet, slow-moving…cheerleader.

Sorry to have missed the deadline for writing to congress about IC–it is one of the most painful conditions–there is no pain like it…

We did get out for my hubby’s steak dinner and that was so nice to sit across from each other in a restaurant. All these things that “normal” people can do become incredibly awesome when we are able to.

Here’s to your hubby…another gem!

]]> By: Jeanne http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1738 Jeanne Sun, 07 Feb 2010 15:28:33 +0000 http://www.lemon-aideonline.com/?p=531#comment-1738 Kerry, What a wonderful post! I too am very fortunate to have a husband who did not run for the hills when my health went suddenly and dramatically downhill! While I was chronically ill long before I met him, it wasn't until after we were married that I *REALLY* got sick. Having attending many (endometriosis) support groups over the years (and having led such a group from 2001-2008), I have witnessed just how common it it for spouses to flee when serious health issues set in. Like you, I have a husband who carries the canoe by himself from off of the top of the van into the water and back. As it's a cedar canoe and quite heavy, this is no small feat. I worry about him carrying all that weight by himself but he insists that it's OK. With my fibromyalgia in particular, I helplessly watch him do it alone. You listed some great ideas at the end too! I hope your husband had a very happy birthday! Jeanne P.S. I just posted on my blog about an opportunity for IC patients' voices to be heard by Congress. Unfortunately, the notification I received from the ICA was on short notice. The deadline for submitting comments is midnight tonight. However, all they need is a short paragraph. :) .-= Jeanne´s last blog ..<a href="http://chronichealing.com/tell-congress-about-your-interstitial-cystitis/" rel="nofollow">Tell Congress About Your Interstitial Cystitis</a> =-. Kerry,

What a wonderful post! I too am very fortunate to have a husband who did not run for the hills when my health went suddenly and dramatically downhill!

While I was chronically ill long before I met him, it wasn’t until after we were married that I *REALLY* got sick. Having attending many (endometriosis) support groups over the years (and having led such a group from 2001-2008), I have witnessed just how common it it for spouses to flee when serious health issues set in.

Like you, I have a husband who carries the canoe by himself from off of the top of the van into the water and back. As it’s a cedar canoe and quite heavy, this is no small feat. I worry about him carrying all that weight by himself but he insists that it’s OK. With my fibromyalgia in particular, I helplessly watch him do it alone.

You listed some great ideas at the end too!

I hope your husband had a very happy birthday!

Jeanne

P.S. I just posted on my blog about an opportunity for IC patients’ voices to be heard by Congress. Unfortunately, the notification I received from the ICA was on short notice. The deadline for submitting comments is midnight tonight. However, all they need is a short paragraph. :)
Jeanne´s last blog ..Tell Congress About Your Interstitial Cystitis My ComLuv Profile

]]> By: Dominique http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1732 Dominique Sat, 06 Feb 2010 02:31:28 +0000 http://www.lemon-aideonline.com/?p=531#comment-1732 Kerry - thanks for the hug. I wasn't trying to show off the CFS recline but my new chair! I do recline an awful lot though, now that I think about it! LOL .-= Dominique´s last blog ..<a href="http://feedproxy.google.com/~r/4wallsAndAView/~3/Ev1zPDJMGFY/" rel="nofollow">I never agreed to this</a> =-. Kerry – thanks for the hug. I wasn’t trying to show off the CFS recline but my new chair! I do recline an awful lot though, now that I think about it! LOL
Dominique´s last blog ..I never agreed to this My ComLuv Profile

]]> By: Sue Jackson http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1731 Sue Jackson Fri, 05 Feb 2010 21:45:12 +0000 http://www.lemon-aideonline.com/?p=531#comment-1731 What a wonderful tribute to your husband, Kerry! Beautiful sentiments beautifully written.. I am also lucky to have a wonderfully supportive husband, but I probably don't tell him that often enough! Sue .-= Sue Jackson´s last blog ..<a href="http://livewithcfs.blogspot.com/2010/02/orthostatic-intolerance-and-cfs.html" rel="nofollow">Orthostatic Intolerance and CFS</a> =-. What a wonderful tribute to your husband, Kerry! Beautiful sentiments beautifully written.. I am also lucky to have a wonderfully supportive husband, but I probably don’t tell him that often enough!

Sue
Sue Jackson´s last blog ..Orthostatic Intolerance and CFS My ComLuv Profile

]]> By: Kerry http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1730 Kerry Fri, 05 Feb 2010 21:34:21 +0000 http://www.lemon-aideonline.com/?p=531#comment-1730 Dominque--I went in and gave him a hug telling him it was from one of my blogger friends--you put a smile on his face! Dominque–I went in and gave him a hug telling him it was from one of my blogger friends–you put a smile on his face!

]]> By: Kerry http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1729 Kerry Fri, 05 Feb 2010 20:54:12 +0000 http://www.lemon-aideonline.com/?p=531#comment-1729 Dominique--I will definatly pass your hug to him. I often think about if I didn't have him, how I would do it. Getting to the grocery store for food can be impossible for many with CFS and often is for me. (I would lose weight, that's for sure). Here's a big hug from me to you. By the way I like your pic--looks so pretty yet shows the reality of the CFS "recline". Dominique–I will definatly pass your hug to him. I often think about if I didn’t have him, how I would do it. Getting to the grocery store for food can be impossible for many with CFS and often is for me. (I would lose weight, that’s for sure). Here’s a big hug from me to you. By the way I like your pic–looks so pretty yet shows the reality of the CFS “recline”.

]]> By: Dominique http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1727 Dominique Fri, 05 Feb 2010 18:55:44 +0000 http://www.lemon-aideonline.com/?p=531#comment-1727 I don't have one, Kerry, but I am so happy you do. That made me cry! Give your husband a big hug from me for taking such great care of you! .-= Dominique´s last blog ..<a href="http://feedproxy.google.com/~r/4wallsAndAView/~3/Ev1zPDJMGFY/" rel="nofollow">I never agreed to this</a> =-. I don’t have one, Kerry, but I am so happy you do. That made me cry! Give your husband a big hug from me for taking such great care of you!
Dominique´s last blog ..I never agreed to this My ComLuv Profile

]]> By: Kerry http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1726 Kerry Fri, 05 Feb 2010 16:53:07 +0000 http://www.lemon-aideonline.com/?p=531#comment-1726 Renee and PJ, so glad you have wonderful hubbies who are there for you too. Here's to each of them, as they are gems, the true blues... I'm having a familiar feeling that I do on my husband's birthday...wanting to feel good enough to get dressed up and look pretty, then take him out to both dinner and a movie. Instead its play it by ear and hope I am at least functioning well enough to take him out to an early bird dinner and if not bring something special to eat in, that he has to go out and get. He won't complain but I know he sure would enjoy the dinner and a movie if it were possible... I also miss baking him a cake. Fortunately he likes pies and Marie Calendar's is always there with yum ones. He is further along in acceptance of this life that is ours than I am. I still seem to wake up each morning surprised that my body doesn't work... Renee and PJ, so glad you have wonderful hubbies who are there for you too. Here’s to each of them, as they are gems, the true blues…

I’m having a familiar feeling that I do on my husband’s birthday…wanting to feel good enough to get dressed up and look pretty, then take him out to both dinner and a movie. Instead its play it by ear and hope I am at least functioning well enough to take him out to an early bird dinner and if not bring something special to eat in, that he has to go out and get. He won’t complain but I know he sure would enjoy the dinner and a movie if it were possible…

I also miss baking him a cake. Fortunately he likes pies and Marie Calendar’s is always there with yum ones. He is further along in acceptance of this life that is ours than I am. I still seem to wake up each morning surprised that my body doesn’t work…

]]> By: pj http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1725 pj Fri, 05 Feb 2010 15:53:46 +0000 http://www.lemon-aideonline.com/?p=531#comment-1725 Kerry~ Our hubbies really our the unsung heroes and yours sounds outstanding; you are truly blessed! And to notice, appreciate & thank his gift makes you even more blessed. Happy Birthday to him! .-= pj´s last blog ..<a href="http://lymeiscrazy.blogspot.com/2010/02/happiness-challenge-month-two-love-week.html" rel="nofollow">Happiness Challenge, Month Two (Love), Week Five (Give Proofs of Love)</a> =-. Kerry~ Our hubbies really our the unsung heroes and yours sounds outstanding; you are truly blessed! And to notice, appreciate & thank his gift makes you even more blessed. Happy Birthday to him!
pj´s last blog ..Happiness Challenge, Month Two (Love), Week Five (Give Proofs of Love) My ComLuv Profile

]]> By: Renee http://www.lemon-aideonline.com/?p=531&cpage=1#comment-1724 Renee Fri, 05 Feb 2010 15:21:36 +0000 http://www.lemon-aideonline.com/?p=531#comment-1724 Oh, what a nice way to honor your husband. He sounds like a real gem, Kerry. I understand all that you are saying as my sweet hubby stands close to yours in the world of caregivers...Thank you for sharing all you have and reminding me of the blessings I have been given with Joel in my life. God bless you both! Happy Birthday to him too. .-= Renee´s last blog ..<a href="http://lymeliving.blogspot.com/2010/02/lymecfs-relapse.html" rel="nofollow">Lyme/CFS Relapse</a> =-. Oh, what a nice way to honor your husband. He sounds like a real gem, Kerry. I understand all that you are saying as my sweet hubby stands close to yours in the world of caregivers…Thank you for sharing all you have and reminding me of the blessings I have been given with Joel in my life.
God bless you both!
Happy Birthday to him too.
Renee´s last blog ..Lyme/CFS Relapse My ComLuv Profile

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